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Thursday, July 8, 2010

379 Posts...

You know, its really hard to stop writing here. So, today, as I sit for my latest three month appointment in a room of folks with varying hair lengths and varying levels of anxiety (both partners and loved ones and patients) I sit waiting for my name to be called. I really try to let the scared feelings of "what if its back" stay out of my mind. I am pretty much a believer in my "cancer free" status, even though I have not been told I am yet by my doctor. I haven't been declared NED. Maybe I should ask him today if I am. Or when I get to be. I am here for a few things and a few of them have been driving me crazy. One that started when I ran my 18 miler, my body started retaining water and has slowly kept this up. Last check up I was the heaviest ever in my life, and even my doc was shocked once he saw my numbers..I have been traveling a bit and airplanes are a nightmare for me. For some reason the retention stays for weeks, and does not go away without water tabs. Then I lose about 5-7 pounds in one night, and still my legs are full of fluid. I can feel it, its uncomfortable to say the least, and I want an answer. No more, well...that's just what happened because of chemo. I want to find someone to explain to me, why and how, and then I can rest. Because in this unknown is where the scared, "is it back" feelings go. I start worrying that there is undetected cancer somewhere causing the retention. My latest vacations have been really almost unbearable with this. I swell, and secretly worry a lot. I finally am talking about it. Okay, now I am back in the little room. The room where I've sat with D, and was initially told all about my cancer, the room that I sat processing all the icky stuff that happened to me, the room that I sit cancer free? No one knows that for sure, that is why I still have to come back here every three months..I wonder when I get to graduate to every six months. There is a question about that..that is why he didn't graduate me yet. hhmmm...so I guess my fretting is okay, and maybe its okay to talk to the loves in my life about it.
There is a sense of...I have worried them all so much and talked to them what feels like to me, till they are all cancer blue in the face, and I just don't want to worry any of them. Its been easier to just talk to my cancer therapist about it (she's very concerned and is the reason I sit here today) and just let everyone go back to living their little lives. My life has gone back to a near normal. But it hasn't arrived yet to my New Normal. I am still figuring it all out.
The other thing we are keeping an eye on are my hormone levels. They were very, very, very low six months ago..low as in there is no way you will come out of menopause...but miracles do happen. To starting my moon, and the numbers coming up ever so slightly to my Onc saying, "maybe you are just doing a sporadic sloughing, and still kid...don't get your hopes up." To, know this past month, I've had two moons, and I think last time I was a little nutty. Maybe. I have NEVER in my life gotten nutty with hormones, but maybe my body just got inundated with them and my counts are way up. I am trying to not get hopeful, and excited about this. We will see. What I do know, is that I am living life to the freaking fullest. There has not been one missed opportunity to have fun. I have started opening my heart and falling in love with a dear tender soul, and that feels good and scary and beautiful.
Life is full. Excited to have my Onc walk in and give him a hug. I can feel the tears already.

1 comment:

Pam said...

Lovin' visualizing full NED with you!