Jen Hoffmann

One of my best friends called me tonight, she lost her sister to breast cancer the same day I finished radiation. We have become very close this past year, through our mutual best friend, Keiko. I have been grappling with the idea of what my Pink Ribbon will read as I pass through my Marathon in Big Sur...actually ending in Carmel. She called me tonight and asked if I'd figured out what my ribbon was going to say. I told her no. At which point she sent me a photo of her sister at the top of Mt. Whitney after her second chemo infusion. She hiked this Mountain and stood on top of it with the sign that read (her supportive husband printed it out for her) and it read....

CANCER SCHMANCER

Those words say it all. And that is what my sign will say.

*uck Cancer....is at the core of it. Is what pushes me when I am hurting and tired. I push through and think of my pain, of what I have gone through. So yes, *uck Cancer...but I don't want to run through that. I want to run through the idea that this is nothing. That cancer couldn't stop me, and nothing can.. I will continue living, and pushing forward...

Hell Yes! JEN HOFFMANN...Survivor that keeps living, in Memory. I will be running through CANCER SCHMANCER.....Thank you.

Jen said in her blog: 8/12/2007::::


Jenn Glickman March 7 at 10:12pm
Clear eyes, full hearts, can't lose...

Sunday, August 12, 2007 by ShawnieMac
On August 10, at exactly 11:44 AM, after ascending exactly 6132.61', (and two days after chemo), we reached the summit of Mt. Whitney under the bluest of blue skies. In spite of all of my recent treatments, we're pretty convinced that the best medicine I've received so far came at 14,497'.

When we reached the summit, after tears of celebration and accomplishment, Greg pulled out this sign he had made before we left (unbeknownst to me). Pretty much sums it up...

Whatever ends up taking me eventually, it sure as hell isn't going to be this cancer...

My last 3 month check-up?

I haven't written from Swedish Cancer Institute in a while, or maybe ever. Chemo took the memory of the past. Driving into the garage, a calm came over me. Pushing the blinking garage ticket button, the arm raised, and I drove in. As I circled my way into the garage, I parked at the same time as another person. A man, and his child. I got out of my car, and looked in his direction. Hoping to catch an eye, an eye of understanding. A Tribal understanding. Walking into the elevator, pushing 1, and going up. Walking through and into the Institue I felt a sense of home. Of a welcoming. Tears started down, and I felt the sadness.
The girls at the front desk remember my name, and handed me my slip with the directions for the blood folks..the infamous tumor marker blood draw..CA 27-? Can't remember. Who cares. Its the test for Breast Cancer, my tumor markers. The test that I will call tomorrow and find out my numbers. I'll mark them down in my little journal, so that I can graph them. Watch them. Live by them, as a cobweb lives in a window sills corner.
As I waited for my blood to be drawn, I look around the room that is full of every kind of person and walk of life. I am nervous now. I was able to keep those feelings at bay until now. I tried calling a few friends before todays appointment, but didn't get in touch with them all. I just wanted to tell everyone that I think today will be my last 3 month appointment. Its February now. In three months, it will be a full year that I was done with my treatment. A full year later, and I will be running a marathon in Big Sur. Big Sur to Carmel. I cannot wait to tell Dr. K this news. I can't wait to hug him, and tell him that I am ready to start being available to young woman who get diagnosed. I came armed with my blog business cards to give him. I am ready to start being a beakon of hope for these girls/woman. To tell them with a determined look, as I was gifted by a Survivor, that they will get through this. They will.
I am going to go now. I want to smile at the folks around me. I want to open myself up to this experience. Feel it. I can't wait to get on the scale.

15 down, 1 to GO

Today was another wonderful day. I jammed as much as I could in a few hours before I had to go to chemo. I wasn't looking forward to it at all, knowing full well that I will be ill for the next few days. The degree of illness is always a new adventure with each chemo. Last chemo, though I had three wonderful days, I was really really sick right after my session. Lets cross our fingers. The other thing that is never constant, and has no rhyme or reason are my blood counts. My friend Tamara asked me what does it mean to have low counts? Her question made me realize that I may not have explained this. Before each session I have to have my port accessed and they stick a huge freakin' needle into the middle of the port, which doesn't hurt at all. Once they've done that they draw blood and check for my White Blood Cell, Platletts,and another one. I forget right now. So far, all my cancellations have been due to my WBC's being too low. Although for the past month my Plateletts have been very low. Today they were really low, but not low enough to cancel.
Anyhoo, so the blood counts are off of that test. Today for some reason they were 4,800 which is good for right now. Last week they were 3,600. A normal person not going through chemo is around 7-10,000. When they cancel my sessions my counts have been in the low 2,000's.
So, I am done with chemo number 15, and only have one left. I am so excited. I have officially gained 29 pounds. I just stood on the scale, in sheer disbelief. It really did take me a few seconds for me to realize that that was right. I stood there getting my numbers wrong. I just can't believe it. I have been eating super good the past month, and not super good in a bad way. Super good in a egg and toast for breakfast, a sandwhich with a fruit for lunch, bake potato and veggie for dinner. Maybe some chicken, on a few days. But that's it. It must be tons of extra water in my body right now.
I haven't said this because I have been hoping and am still hoping that its just some weird infection that isn't causing phlegm in my lungs. But for exactly a month, when I lay on my side my lungs hurt. And I mean hurt. They hurt so bad that I have to cough and cough. It happens when I sleep, but mostly when I wake up in the morning. All the usual sicky things are not happening to me. Today, after four weeks of me telling my Onc this, and me not coming up with a cold, he ordered me to have a CT scan of my upper chest and abdomen. Last night they hurt so bad (I'm a side sleeper) that it woke me up over and over. He thinks its very strange and says that its almost zero percent that I'd develop cancer in my lungs while I am getting such high doses of chemo. Nevertheless, its a scary thing that is happening and on friday I am getting the scan. We'll see what's going on and at least I can sleep with painful lungs knowing that there isn't anything in there that is hurting them. Maybe its just a strange side effect from the chemo, or the sheer weight of 30 new pounds squishing my little lungs. Which seems to be the culprit, I bet!

Little Hopes

I have decided from the get go of this whole cancer thing to not dwell on future possibilities and to be in the present moment as much as possible. And more than any other time in my life I have been able to do this. This practice allows the possibilities to come through the thought process, acknowledge them and then let them go. One of those things is, Will I loose my fingernails? In this place of non-dwelling there is hope. Hope of coarse that whatever the random fear is, won't happen. Out of my 10 fingernails, only two have not turned black and blue and disgusting looking. Luckily all of them have stopped being numb and absolutely painful at the same time. But this morning one of the two that wasn't black and blue was numb and tonight it came right up off the nail bed. Not painful at all, although I didn't tug on it. It is still connected to the cuticle area, so I know have it securely wrapped with a bandage.
In the time that I realized indeed another one of those fears has manifested, I had to get sad. It is so disappointing and a bit crushing to my spirit to have my body that I cared for so tenderly for so many years literally falling apart. I feel the sadness for my fingernails in my solar plexus for some reason. Its a bit heavy there right now. Chemo got moved from my traditional afternoon appointment time to the morning, 9 am tomorrow. I agreed, and now wish I didn't. I would've like those extra five feel good hours. Christmas is going to be absolutely uneventful. I was going to cook a traditional Norwegian meal, but its just too much this year. I am exhausted and were going to rest. I feel really emotional that I have chemo tomorrow and that it's snowy and Christmas and I feel that this holiday is just breezing past us. I feel the spirit of Christmas, I've been singing all my favorite carols and such. It's just totally different this year. I can't put my finger on it other than it feels like Heather is gone some where else.
I ran into my yoga teacher today as I sat up at my real estate office for a bit this afternoon. I've known her since I was 17, so that's 16 years later. It was nice to see her today. She said oh, your such a Pitta and the chemo is so Pitta. Well, yes. I am, and it is, and maybe that is why its so incredibly difficult for me. But really, who is chemo not difficult on. Soon, soon, it will be all done. s

Weeping Eyes

I went to the eye doctor today. He said that everything is fine, he thinks. He flushed my tear ducts with a huge freakin' needle. The way you do this is the doctor puts in numbing eye drops (but you still can feel, maybe its just the pressure I felt) and with a huge needle when you're wide awake he sticks it into your lower tear duct and flushes some kind of fluid in there. It clears open the duct and drains to the back of your throat/nose. D was in the room with us just talking away and I was in such a panic telling myself, don't move, don't move, just breathe. Luckily the doctor asked him to stop talking while he was doing this. I couldn't talk and before I knew it it was all over.
He is one of the nicest doctors I get to work with through all this cancer stuff. His appointment today burst my heart open again with hope and I am no longer worried that my life is going to be full of tissue and tears. If you think about it, it is one thing to have an emotional upset in your home. But if you are bald, and walking down the street dabbing your eyes, it looks like you're crying when you're not.
So, I am thrilled that the doc thinks everything will be fine. He said that the next few weeks we just need to keep the ducts open while doing the chemo. And then about six months after treatment my eyes should be back to normal.
I am feeling really good today. Not sick to my stomach at all. Here is a link to a picture so you can check out the anatomy of the eye.
http://www.goldblumeye.com/Web%20Pages/NLDO.HTM

erasing and going back

I have erased the 'survivor' post as you may notice. I have decided through this process that I am going to assume that all of you do not care if I write about our personal conversations, unless you tell me otherwise. I will not be hurt by this and respect that you do not feel comfortable with this. But please tell me, I cannot know who doesn't feel good about that or not, this will help those of you that this would feel hurt, so that you do not get hurt. Okie dokie, so you all will be responsible for telling me your limits! Thanks.
____

I am happy to say that my old self, Heather feels like she is back. Yesterday I started feeling towards the end of the day, like myself again. Myself with cancer, but so much better. The fertility people sure were right when they said that I would get noticably more sensitive. My life literally felt like it was closing in on itself the past three weeks. I can't say my blog won't be sad, but I don't think I will be so gloomy now. When I meet a young woman that is newly diagnosed AND doing the fertility thing, I will truely understand how intense her life seems to her now. I started doing massage this weekend and feel so good doing it. I know that some of you worry, and I know that one day I wrote in my blog saying that I thought that that was a bad idea, or did I say inherently wrong, : ) but that was a fleeting moment and those of you that know me, knew that. So, yep I am doing massage again and loving it. No stress, just love. That is what this is all about. Love. I will make it through and it is because of all your and my and the earth's love.

A perfect summer day

One of my all time favorite movies is on right now, Charlie and the Chocolate Factory. I couldn't sleep last night. The fact that I can't sleep anymore is so foreign to me. I could go to sleep at 9 or even 8 in the evening and wake up at 6 or 7 the next day, everyday of my life. I have never ever had trouble sleeping. I also never used to not be able to control my mind. Last night was one of those nights. I literally was loosing my mind over everything. I called my friend Gen close to 1 a.m. I knew she'd answer her phone and I also knew she could calm me down. I am anxious about starting chemo. I feel so much pressure to not have any side effects. When I first got diagnosed so many people said they knew people that it didn't effect them at all. At that time, I didn't realize there were different kinds of chemo and different treatments. Now that I have walked in the cancer shoes for almost 7 weeks now, I would say that 90 % of the women I have talked with that did AC got pretty darn sick. I am really nervous about this. I could breeze through this and just need to sleep a lot, or worst case scenario I would be staying in the hospital.
The vast experiences do not bring comfort to me. Sure, those that say attitude made it be a positive experience for them, are also the ones that breezed through it. Is that again just a coping mechanism we have? Attitude doesn't change much, other than I can smile as I go through everything. My mom taught me this as I watched her journey for close to nine years after she had her stroke. My aunts and my siblings, we would choose to laugh with my mom, or we would cry. So, sure, attitude does make things better. The other thing I have found so confusing is that EVERYONE that mentions (usually those of you that do not have cancer) that they have spoke to people that went through chemo #5 was the worst, or #1 was the worst, or #? whatever. You get the idea. What this shows me is that it is my body's chemistry that is going to present to ME, MY process through this. MY body's ability to cope with the chemo and radiation is unknown to everyone, including my Oncologist. He more than anyone, and D is a close second, is just saying we'll have to see. So, last night I couldn't sleep. This whole process is teaching me so much, and one of those lessons is simply not being able to plan. I mean, how could you plan for something like this? Either I just sleep a lot, or I could be walking on the 12th floor of Swedish hospital a few weeks a month. There are too many possibilites. There is one thing for certain, next week at this time we all will know!
On a very fun note, today D and I went out on our friends Todd and Kim's boat. We got lots of sun and I got to have one more summer day before this all starts!

Family

When I hung the phone up with the first lady that called to tell me I have breast cancer and that I needed to come to the Breast Center right away, I hung up and called my Dad.  I told him that I knew nothing more than that I have Breast Cancer (do you capitalize this or not?  To me its EVERYTHING right now, and seems like it has earned its right to be so)  and could he call the family and tell them, and call my best friend that I grew up with Jody; her mom fought a long and serious battle with this evil disease, I knew she'd totally understand.  

The hard part with all of this is that my older sister, by nine years found a lump in her breast the week I went to my first Doc.  Her Doc's said that it had calicified, whatever that means.  Which makes this whole thing a bit scarier because my Nana got diagnosed in her late fifties.  We have learned this could be genetic, something I had only heard of and thought was for people on the news.   She went to the MAYO clinic and because my Nana is one heck of a good fighter it didn't come back.  Now didn't I just say that Jody's mom was a Scraper too? Its funny how we as a society believe if someone beats someone or something that they were the best.  With this Disease there are no "best" there is no such thing as someone who "won" their battle because they fought a good fight.  It comes down to chance, and how this silent killer is going to be in ones body.  Okay Heather, remember your young.  This is going to be alright.  Right?  Everyone keeps saying that to me.  Everyone.  I will be alright.  My new Mantra.  A young Survivor I spoke with on the phone this week told me a Mantra for her, This IS Manageable.  

I knew what she meant this week.  As I have had the most toxic stuff pushed through my body.  It has taken me two days to get over those PET/CT scans goodies.  Yesterday for my MRI I got a new kind of liquid contrast based with Gadolinium.  The bottle said it was FDA approved but if you have kidney problems I should tell them.  I was so elated when I left that MRI place.  Finally the sortof good news, that it wasn't in my bones, but may be in my lymph nodes under my arm sank in.  I was done with my Scans!!  Yippee!  Last night the three of us (my younger sister is in town), drove up to the Alaska Junction to have dinner.  I still do not have an appetite but D keeps reminding me that I still have to choke down some food.  Jokingly reminding me that he has seen me eat some big meals, and knows that I love to eat.  So we drove up to the Junction and it was packed.

We parked behind my office.  The office that I used to kick butt in as a Realtor and just last month sold 4 homes.  I felt a sense of something had been taken from me.  I had to let go of three upcoming listings this week as I just new the stress was immediately not going to work.  I love everyone in my office.  It was a little sad.  Oh, here comes that pity party again.  I have to remember my mom here.  A very religious woman, she'd just caste that devil out of here.  So, I will just caste those bad thoughts out of here.  Or was there that 80's commercial of, " I'm going to wash this, mmmm right out of my"  now this isn't a singalong you guys.  Dinner.  We walk up to have Sushi, my sis loves it.  By the time we walked just 4 blocks I was spent.  There was a line, and just four chairs in the waiting area that were full.  How do you ask someone to get up because I need to sit down.  Would I look convincing?  I am just 33 and look from the outside world healthy as could be.  My stomach started to feel a bit nauseous and the lady said it was going to be a half hour wait, we could write down our cell number and she'd call us.  

Usually this would be fun.  I could stroll around looking at the shops.  I usually find my eyes and heart wanting to go past this really cute kids clothing store, but not today.  I told D and my sis that I had to go home.  Let's just get something to go.  D walked back and got the car as we got Mexican to go for them.  I wasn't going to eat.  

No matter how old we are those sibling " I want what you have" passes through me still at times.  And dinner last night was one of those times.  I got what she had ordered and we drove home.  I feel closer to "normal" at home.  I am not around a ton of city people that are healthy all running around with their heads full of their to-do lists.  We tried to watch the newest Will Farrell flick, boring.  I instead wrote down my list of questions for my Oncologist.  I get to meet with him this morning at eleven.  This meeting is what woke me up early today.  I have a huge whirling Monarch butterfly family in there.  So many questions.  

One is that it seems like all these little glow potions have really sucked the soul from me the past days.  Is this normal?  Or since my body is so pure (like the word pure, I struggle for about 30 seconds trying to remember how to spell it) is this all going to affect me a huge way.  Not that I want him to treat me not aggressively because we need to.  I have at least 50 more years on this planet.  But maybe I will need more anit-nausea medicine.  Medicine I would never had agreed with.  Guys I think the flu shot is bad.  One of those things that is the pharmaceutical companies way of getting their pocket books into America.  So..when I say I don't take anything, that means nothing.  

My sis is sleeping on the coach.  She is really worried about her breasts too.  This sis is only a year and seven days younger.  My Dad says when we are around each other we become one person.  We talk on the phone at least once a day, usually more.  Yesterday before she came up here, she went to see her Doc about her breasts.  She graduates from nursing school next Friday.  I still don't know if I can drive all the way down to Eugene.  I don't want to miss it for anything in the world.  But right now, I can't imagine driving down there.  She said she doesn't want me down there if I don't feel good.  I think I will though, no more chemicals for a while.  She's decided to get a Mammogram and an UltraSound just to make sure everything looks good.  I feel bad for her.  She is so young and I know she is scared for herself.  My poor Dad had to face the possibility of my older Sis and I having it in one week.  I think a little too much for him to bare.  He has always said that one of the worst thing that could happen in life is if one of his kids went before him, "Parents shouldn't have to bury their young."   Dad, you won't need to.  Don't worry.  

Good thing he raised a little athlete.  This is where I plug sports, for all of those that think that playing sports is dumb, I will prove to you how more than a little game they all are.  One of the core strengths I am pulling from right now is my athlete in me.  I am SUPER competitive.  I can't even make myself play a game of freakin' dominos with D without being pissed if I lose.  So with this Cancer that I have, I have had to go this athlete that resides deep in me.  I've had to call her to action.  I acutally for the first time in my life have a true battle ahead of me.  The Docs and all of you are on my team.  But I am the leader, K. I'm laughing right now.  I'm not trying to be egocentric, this is just how I've made it in my head. And thanks D for being so nurturing in this way as to let me tell you I need to change the plans. I am now, for the first time in my life.  THE CENTER of it ALL.  I have to have it be that way.  If I am talking on the phone and need to get off, now I get off.  I just say I have to go.  If I need to leave the restaurant because I don't feel good, we leave.  

My mother in law came two nights ago.  I HAD to FORCE myself to relax.  She was here to help me (the night of the PET/CT's).  I kept going into the kitchen and trying to help her.  She gently said, "I'm trying to help."  I realized I needed to let go.  She can find the plastic wrap, she can find a glass for water for me to drink.  She made me an amazing bowl of potato salad, I can't wait to eat.  I think its time for me to take time for myself.  Luckily I am not a single mom who has to put food on the table.  For those of you that are out there, I shed a tear for you and how hard this is.  Is there a place in this amazing city, that people going through treatment like this single mom can have dinner and groceries brought to her at no charge?  I don't believe in handouts.  In fact I don't want to help anyone that can help themselves, as I see it I am just causing them to be further victimized.  But I do believe in helping people that can't help themselves and that are trying to be better/healthier Americans.

My little sis is gently doing some cute Zzz's on the coach.  How is it that we love so deeply.  What is it like to have a child?  This is something that all of you know has been a bit of a despair in my life.  I want them so badly, and waiting has been sucking my life from me.  Luckily, D was wanting to wait a few more years.  D, Thank YOU!!  But now, for the first time in my life, I can't imagine going through this with kids.  Mainly because of the unknown's at this time.  I can take space from friends and family but kids are always there just in that Present state of being being precious.  Just looking up at you with all the love that ever existed in the world, just beaming that love at you, yes..even when they are kicking and screaming, it shines through.  Shining through because they feel safe enough to kick and scream and develop into their little selves before your eyes.  What a gift this will be someday.  But that day now, is further from today than I'd hoped a month ago.  

I was offered by friends Lisa and Jack to bring their baby by for a play date, during my treatment.  This was the one thing that I knew I'd be calling to ask for.  With them here of coarse, but that sounds fantastic!!